Good news!
Since backing off to the 2X a day dose of the Gabapentin, I haven't had anymore twitching! I have also noticed that the burning and stinging pain in my hands is much less, and they even tingle less than before. The shards-of-glass joint pain is still ever present, however, and my skin is feeling very tight today.
Bad news!
This morning I looked down at the hand in my lap and jumped because I didn't know whose it was. They just don't look like my hands anymore. I don't like that. I really liked how my hands looked before. They were one of my favorite features. Plus I gesticulate with my hands so much when I talk and now that I can't move them I feel like I'm moving my arms around with dead fish flopping at the ends of my wrists. Not what I'm going for.
I have Hypermobility Type Ehlers Danlos Syndrome, Undifferentiated Connective Tissue Disease, and a basket full of other health crap. When everything keeps falling out of place, it's important to have somewhere to keep track of where it falls.
What the heck is EDS?
About Me
My Pain Level Key
1. WOOHOO!
2. Pretty awesome.
3. Alright. Not easy but doable.
4. It's an average day.
5. Meh. All but simple tasks take effort.
6. Been worse. Limp time!
7. Been better. Likely not walking well.
8. This is stupid. Likely barely walking at snail's pace.
9. On a positive note: I'm still breathing. Bedridden but coherent.
10. Mostly human. Around this point I can't string together sentences.
(to clarify: I have pain 1-10. Never goes away, just varies in intensity.)
2. Pretty awesome.
3. Alright. Not easy but doable.
4. It's an average day.
5. Meh. All but simple tasks take effort.
6. Been worse. Limp time!
7. Been better. Likely not walking well.
8. This is stupid. Likely barely walking at snail's pace.
9. On a positive note: I'm still breathing. Bedridden but coherent.
10. Mostly human. Around this point I can't string together sentences.
(to clarify: I have pain 1-10. Never goes away, just varies in intensity.)
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